| Information for Practitioners |
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| Reporting Form |
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Select desired format for download:
- Childhood Diabetes Database Practitioner Reporting Form: PDF | Word®
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| Materials for Parents |
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This trifold brochure provides basic information for parents about the Childhod Diabetes Database. Health care practitioners may distribute these brochures to families with children with diabetes.
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| Frequently Asked Questions |
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What is it and when did it get started?
In 2001, the state legislature passed a law (ORS 444.300) requiring the Oregon State Public Health Division to establish a system to learn how many children in Oregon aged 18 years or younger are affected by diabetes. Recently, a small amount of money was dedicated to creating the system. Both schools and providers are required to report cases of type 1 and type 2 diabetes to the database.
What is the purpose?
The database was established so that we can better understand the impact of diabetes on children in Oregon. Although we suspect that the number of children with diabetes in Oregon is increasing rapidly, we don't have the data to know this for certain. The database will collect data about the prevalence and incidence of diabetes occurring in the pediatric population, and will maintain a separate list of families who are interested in participating in scientific and medical research. The data may also be used to assist in making decisions about the allocation of public resources.
Why should we report to the database?
The database will only give an accurate picture of the impact of diabetes among children in Oregon if the information that it contains is complete. For the database to be effective in helping to address the needs of children with diabetes, it is important that we collect information on as close to 100% of Oregon's children with diabetes as possible. School reporting to the database requires parental consent, but provider reporting does not. Because some parents may opt out of the school reporting process, it is especially important that providers submit information on all children with diabetes who are treated in their practices.
How do we report to the database?
The easiest way to report to the database is to complete one of the enclosed forms for each child with diabetes treated in your clinic. You can complete the forms by hand or electronically (an electronic copy is available in pdf format on our Web site), and fax or mail it to the CDD program. Alternatively, if there are more than 50 children in your clinic who have diabetes, you can submit an electronic file with the required information directly to the CDD. Please contact CDD program staff at the phone number or e-mail address below for further instructions, if you choose to submit your data electronically.
What should we tell parents about the database?
The CDD is an important new project that aims to improve diabetes care for children in Oregon. The database is maintained on a secure computer at the Oregon State Data Center. The information is also granted legal protection under Oregon law and cannot be accessed even by court subpoena. Information will be shared with others only in aggregate form (e.g., in the form of incidence and prevalence rates). Once a child's information is in the database, CDD program staff will contact parents directly and offer the option to accept or decline contact regarding research opportunities. Parents who wish to participate in research opportunities will be made aware of research opportunities that arise. Researchers who wish to contact these families must meet strict standards and confidentiality requirements.
What are the risks?
The main risk is possible illegal access to database records by someone without authorization (like an insurance company) with whom parents would not want to share information. The security measures described in the previous section are intended to prevent such illegal access.
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