Genetics Data and Surveillance

The Oregon Genetics Program uses multiple data sources and surveys to gather information about family history, healthcare provider practices, genomics, genetics, and chronic disease. By collecting and analyzing population-based data, our program can monitor health trends and use the data for program improvement and evaluation.

Oregon Behavioral Risk Factor Surveillance System (BRFSS)

The BRFSS is the largest continuously conducted telephone health survey in the world. It enables Oregon Genetics Program to monitor the family history risk for chronic diseases. The BRFSS also includes questions on folic acid.

Oregon Genetic Program BRFSS Questions

• 2006 Oregon Genetics Program BRFSS Results 

• 2005 Oregon Genetics Program BRFSS Results 

BRFSS Posters

• Poster on Family History of Diabetes: Incorporating genomic data into the BRFSS  

• Poster comparing four states' BRFSS family history and genomics surveillance questions  

BRFSS Questions: Oregon Diabetes Program

• 2004 Oregon Diabetes Program BRFSS Results  
• 2003 Oregon Diabetes Program BRFSS Results  
• 2002 Family History of Diabetes BRFSS Results  
• 2001 Family History of Diabetes BRFSS Results   

• 2002 Folic Acid BRFSS Questions 
• 2001 Folic Acid BRFSS Questions 
• 2000 Folic Acid BRFSS Questions 
• 1997 Folic Acid BRFSS Questions (scroll to Folic Acid Section)
• 1996 Folic Acid BRFSS Questions  

Pregnancy Risk Assessment Monitoring System (PRAMS)

Oregon PRAMS collects data on maternal attitudes and experiences prior to, during, and immediately after pregnancy for a representative sample of Oregon wome. PRAMS allows the Oregon Genetics Program to monitor whether health care providers talked to pregnant mothers about tests that screen for birth defects and about folic acid consumption and awareness.

• PRAMS Questions on Health Care Provider Discussion and Offering of Prenatal Screening Tests for Birth Defects
  • 2002 Discussion of Prenatal Screening Tests PRAMS Results   
  • 2002 Offering Prenatal Screening Tests PRAMS Results   
  • 2001 Discussion of Prenatal Screening PRAMS Results   
  • 2000 Discussion of Prenatal Screening PRAMS Results   

• PRAMS Questions on Taking Multivitamins or Folic Acid Before Becoming Pregnant
  • 2002 Taking Multivitamins PRAMS Results   
  • 2001 Taking Multivitamins PRAMS Results  
  • 2000 Taking Multivitamins PRAMS Results 
  • 1998-1999 Taking Folic Acid PRAMS Results  

• PRAMS Questions on Awareness that Taking Folic Acid Prevents Birth Defects
• • 2002 Folic Acid Awareness PRAMS Results   
  • 2001 Folic Acid Awareness PRAMS Results   
  • 2000 Folic Acid Awareness PRAMS Results   
  • 1998-1999 Folic Acid Awareness PRAMS Results   

• UW CGPH Survey Inventory  

Oregon Genetics Data Assessment

Information summarizing a broad assessment of genetics data maintained in Oregon, which was completed in preparation for the creation of Oregon's Strategic Plan for Genetics and Public Health. Reports in the assessment were created for the Oregon State Genetics Plan (~2000-2002). Some information may no longer be current. Please contact Genetics Program Staff if you have questions about supporting materials.