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Nursing Manual

Seizures (Epilepsy)

In persons with developmental disabilities, common issues that complicates the management of epilepsy include:

  1. Damage to the central nervous system.
  2. Seizures that do not respond to treatment (medically intractable epilepsy).
  3. Seizures that are more difficult to diagnose as many individuals are unable to give subjective data about their seizures.
  4. Under or over reporting of seizures because they may be difficult to recognize by others.
  5. Multiple seizure types.
  6. Injuries due to falls from seizures.
  7. Aspiration during a seizure.
  8. Treatment with more than one antiepileptic drug (polypharmarcy).
  9. Antiepileptic drug (AED) side effects; both short and long term,
    may cause severe health problems.
  10. Drug side effects that may mimic symptoms seen during illness.
  11. Restricted lifestyle or concern over physical appearance leading to refusal of treatment such as wearing a helmet.
Nursing Assessment
(Includes record reviews, history, assessment and staff interview)

Record Review/History

  • Physician has written the diagnosis
  • History of hospitalizations or emergency treatment for seizures
  • Person takes medication for epilepsy
  • Person has received an injury during a seizure
  • Person has aspirated during a seizure
  • Person is non-compliant with their medication regimen
  • Person is at risk for dehydration
  • Person wears protective gear for prevention of injuries during seizures
  • Person has PRN urgent medication for serial or prolonged seizures
  • Person takes other medications that may interfere with the antiepileptic medications
  • Person has challenging behaviors that may complicate the monitoring and treatment of epilepsy
  • Person has a seizure protocol
Assessment

  • Ask the person if they have a warning prior to the seizure. If they are non-verbal, do people around them notice a consistent change in behavior or demeanor? Can they protect themselves from injury by sitting or lying down?
  • Does the person receive injuries during their seizures that need medical attention? Do they complain of a headache and/or muscle aches after a seizure? Have they ever bitten their tongue or cheek during a seizure?
  • Do they continue to be lethargic for hours after the seizure? Do they need to have their daily routine changed to allow for rest?
  • Assessment for antiepileptic medication side effects. Most common side effects that are usually associated with all of the AEDs are: lethargy, GI upset, ataxia, visual disturbances, blood disorders, elevated liver function tests and decrease in cognitive function.
Staff Interview

  • Reports of unusual behavior or activity that are episodic, of short duration and out of context with what is going on in the environment.
  • A written or narrative description of the unusual behavior or activity in detail (what happened before, during and after the event).
  • General function and alertness of the individual.
Health Care Plan/Nursing Care Plan

  • Is based on professional assessments of the person's health care:
    • Problems
    • Support needs
  • Identifies
    • Measurable and appropriate goals
    • Specific interventions
    • By whom and how frequently the data will be monitored
  • Refers to an individualized seizure protocol that contains:
    • What this person's usual seizure activity looks like for each kind of seizure
    • Interventions during the seizure; interventions that promote safety i.e. water precautions and a helmet; and PRN seizure medications.
    • Reminders for the staff to call 911 if they believe the person appears gravely ill or if they are concerned about their health and safety.
Goals

  • Number of seizures/month/year within the range set by physician or ISP team
  • Accurate identification and recording of seizures
  • Minimize side effects from the antiepileptic drugs
  • Antiepileptic drug levels that remain within target range as recommended by physician
  • No injuries or aspiration/pneumonias or drowning
  • Minimize impact on quality of life (i.e. going to work daily, no lethargy during at the work site)
  • Person remains compliant with medication regimen and laboratory tests
Interventions

  • Giving Medications on time
  • Keeping accurate description of seizures and counts
  • Monitoring for side effects
  • Monitoring anticonvulsant blood levels
  • Keeping the environment as safe as possible
  • Water safety precautions (such as 1:1 continual observation in pool/tub, wear lifejacket, use shower only, no tub baths, etc). Precautions must be considered when bathing/swimming if there has been a seizure in past 12 months, or seizure medications have been changed within the last six months.
  • Monitoring for compliance with safety devices and keeping them in good repair
  • Individualized seizure protocol and staff training
Evaluation

  • Analysis and review of interventions on appropriate data collection records used by RN or staff
  • Review person is and staff's training needs
  • Review and continue to monitor person's response
Red Flags (Issues that should prompt a review)

  • Increase in number or intensity of seizures
  • Physician changing antiepileptic medications
  • Injuries or aspiration during a seizure
  • Increase in lethargy and cognitive impairment
  • Dehydration
  • Refusal of medications and use of protective gear
  • Change in description of seizures
  • Multiple seizure descriptions or ill-defined seizure descriptions
  • Abnormal lab tests

 

Page updated: September 22, 2007