Oregon Systematic Tracking of Elevated Lead Levels and Remediation (STELLAR) Database

Metadata:


Identification_Information:
Citation:
Citation_Information:
Originator: Oregon Department of Human Services, Lead Poisoning Prevention Program
Publication_Date: Unknown
Title:
Oregon Systematic Tracking of Elevated Lead Levels and Remediation (STELLAR) Database
Online_Linkage: http://www.oregon.gov/DHS/ph/lead/index.shtml
Description:
Abstract:
STELLAR is a software application provided free of charge by the Centers of Disease Control (CDC) to State and local Childhood Lead Poisoning Prevention Programs (CLPPPs) with a practical means of tracking medical and environmental activities in lead poisoning cases. The intent of this application is to provide an electronic means of storing childhood lead exposures, medical, and laboratory data that the state program receives from labs, providers, clinics, parents, and local health departments.

In Oregon, STELLAR is a database that contains all childhood blood lead tests from 1991 to present. While the focus is children, the file does contain data and information on adults.  Data and information comes from all clinical laboratories known to the Oregon Childhood Lead Poisoning Program. Data and information is transmitted by mail and fax, and electronic records are through Oregon’s  National Electronic Disease Surveillance System - Electronic Lab Reporting (NEDSS-ELR) project.
Purpose:
The purpose of the Oregon Childhood Lead Poisoning Prevention Program (OCLPPP) is to eliminate childhood lead poisoning as a public health problem by 2010. The purpose of STELLAR is to have a repository for all blood lead tests in Oregon and a lead poisoning case management system.
Supplemental_Information:
Unfortunately, risk factors for exposure to lead hazards are still relatively common in many parts of the US. Two major factors place children at higher risk for lead poisoning, living in poverty and living in older housing (primarily pre-1950). According to the National Health and Nutrition Examination Survey NHANES III, Part 2, poor children were four times as likely to have elevated blood lead levels (EBLLs) as middle income children and eight times as likely as high income children. In the same survey, children living in pre-1946 housing were five times as likely to have EBLLs as children living in housing built after 1973. To make the problem worse, we know that poor children tend to live in older housing.
Time_Period_of_Content:
Time_Period_Information:
Range_of_Dates/Times:
Beginning_Date: 1991
Ending_Date: present
Currentness_Reference:
As of time period end date
Status:
Progress: Complete
Maintenance_and_Update_Frequency: As needed
Spatial_Domain:
Bounding_Coordinates:
West_Bounding_Coordinate: -124.97
East_Bounding_Coordinate: -116.41
North_Bounding_Coordinate: 46.35
South_Bounding_Coordinate: 41.91
Keywords:
Theme:
Theme_Keyword_Thesaurus: CDC Controlled Health Thesaurus (CHT)
Theme_Keyword: Lead poisoning
Theme_Keyword: Lead
Theme_Keyword: Childhood lead poisoning
Theme:
Theme_Keyword_Thesaurus: None
Theme_Keyword: Blood lead level
Theme:
Theme_Keyword_Thesaurus: SNOMED-CT
Theme_Keyword: Increased blood lead level
Theme:
Theme_Keyword_Thesaurus: ISO 19115
Theme_Keyword: health
Place:
Place_Keyword_Thesaurus: Geographic Names Information System (GNIS)
Place_Keyword: OR
Place_Keyword: Oregon
Access_Constraints: Confidential medical and health information is protected by federal and state laws. Information collected by the Oregon Lead Poisoning Prevention Program is secure from public disclosure. However, the data without personal identifiers are available to researchers to assist them in research with restrictions and legal prerequisites for using the data set after access is granted. These include any access constraints applied to assure the protection of privacy or intellectual property, and any special restrictions or limitations on obtaining the data set. Access to this data requires formal IRB approval.
Use_Constraints:
Before the release of any data, all research proposals requesting the use of confidential lead test data must be reviewed by Oregon Department of Human Services, State Public Health Division for compliance with the following criteria:

1) Proposed research will be used to determine elevated blood lead levels, focus additional testing for Oregon residents, and reduce the burden of elevated blood lead levels;

2) Data requested are necessary for the efficient conduct of the study;

3) Adequate protections are in place to provide secure conditions to use and store the data;

4) Assurances are given that the data will only be used for the purposes of the study, and assurances that confidential data will be destroyed at the conclusion of the study;

5) Researcher(s) have adequate resources to carry out the proposed research;

6) Research proposal has been reviewed and approved by the Oregon Department of Human Services, State Public Health Division's Committee for the Protection of Human Subjects or is exempt from such review;

7) Any additional safeguards needed to protect the data from inadvertent disclosure due to unique or special characteristics of the proposed research have been required of the researcher.
Point_of_Contact:
Contact_Information:
Contact_Organization_Primary:
Contact_Organization: Lead Poisoning Prevention Program, Public Health Division, Oregon Department of Human Services
Contact_Address:
Address_Type: mailing and physical address
Address:
800 NE Oregon Street, Suite 640
City: Portland
State_or_Province: Oregon
Postal_Code: 97232
Country: USA
Contact_Voice_Telephone: 971-673-0440
Contact_Facsimile_Telephone: 971-673-0457
Hours_of_Service: 8:00 am - 5:00 pm Monday through Friday
Contact Instructions:
Call
Security_Information:
Security_Classification_System: None
Security_Classification: Restricted
Security_Handling_Description: This dataset is maintained on a server that is isolated from the Internet by a hardware-based firewall.
Native_Data_Set_Environment:
Microsoft Windows; STELLAR Database
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Data_Quality_Information:
Logical_Consistency_Report:
None
Completeness_Report:
When quarterly and calendar year data is submitted to the Centers for Disease Control and Prevention National Childhood Lead Poisoning Database, a series of algorithms and programs check the data for valid values and inconsistencies.  These algorithms and programs produce reports indicating data errors. A data quality report along with a data file containing any rejected records are transmitted back to the state program for data editing and corrections.  The files produced are:

Report of the Rejected Records*****.RPT
File of Rejected Records*****.BAD
Alert Report*****.ALT
Lineage:
Process_Step:
Process_Description:
Data is entered into STELLAR from a variety of sources. Data is submitted to the CDC on a quarterly and annual (covering previous calendar year) basis.
Process_Date: Unknown
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Entity_and_Attribute_Information:
Overview_Description:
Entity_and_Attribute_Overview:
STELLAR includes names, sex, age, address, blood lead levels and other demographic information. Currently, no online data dictionary is available. For more information see the CDC STELLAR page in the entity and attribute detailed citation.
Entity_and_Attribute_Detail_Citation:
http://www.cdc.gov/nceh/lead/surv/stellar/stellar.htm
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Distribution_Information:
Distributor:
Contact_Information:
Contact_Organization_Primary:
Contact_Organization: Lead Poisoning Prevention Program, Public Health Division, Oregon Department of Human Services
Contact_Address:
Address_Type: mailing and physical address
Address:
800 NE Oregon Street, Suite 640
City: Portland
State_or_Province: Oregon
Postal_Code: 97232
Country: USA
Contact_Voice_Telephone: 971-673-0440
Contact_Facsimile_Telephone: 971-673-0457
Hours_of_Service: 8:00 am - 5:00 pm Monday through Friday
Contact Instructions:
Call
Resource_Description: STELLAR Database
Distribution_Liability:
In preparation of any program data and information, every effort has been made to offer the most current, correct, complete and clearly expressed information possible. However, some errors in the data and information may exist. In particular, but without limitation, the Lead Poisoning Prevention Program disclaims any liability for compilation and typographical errors and accuracy of the information that may be contained in the data and information. The Lead Poisoning Prevention Program reserves the right to make changes to data and information at any time without notice.
Custom_Order_Process:
None
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Metadata_Reference_Information:
Metadata_Date: 20080826
Metadata_Contact:
Contact_Information:
Contact_Organization_Primary:
Contact_Organization: , Environmental Public Health Tracking, Public Health Division, Oregon Department of Human Services
Contact_Address:
Address_Type: mailing and physical address
Address:
800 NE Oregon Street, Suite 640
City: Portland
State_or_Province: Oregon
Postal_Code: 97232
Country: USA
Contact_Voice_Telephone: 971-673-0977
Contact_Facsimile_Telephone: 971-673-0979
Contact_Electronic_Mail_Address: epht.ohd@state.or.us
Hours_of_Service: 8:00 am - 5:00 pm Monday through Friday
Contact Instructions:
Email or call
Metadata_Standard_Name: FGDC Content Standards for Digital Geospatial Metadata
Metadata_Standard_Version: EPHT Metadata Profile Version 1.2
Metadata_Access_Constraints: none
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