Approved 6/1/12 Minutes SILC Quarterly Meeting Friday, March 9, 2012 • 8:30 a.m. to 4:00 p.m. Salem Conference Center • 200 Commercial Street SE • Salem, OR INTRODUCTIONS Attendees: Tony Ellis, Randy Samuelson, Ben Luskin, Dodie McKenzie, Mike Volpe, Ann Balzell (Chairperson), Susan Melero, Janet Lowther, Harvalee Hess (OCB), Cindy Campbell Sherry Stock, Barry Fox-Quamme and Margi Morgan. Absent: Stephaine Parrish Taylor. Administrative Note: Sherry Stock and Barry Fox Quamme arrived at 9:00 and 9:30 respectively. Janet Lowther arrived after the lunch break at 1:15 and Ben Luskin left at 2:30. Staff Present: Joan Claypool, Joette Williams, Shelly Emery, Tina Treasure, Christine Peries (ASL interpreter), Ashley Paul (ASL interpreter) and Mark Beasley (Cascade Sound) Guests Present: Debora Morera (personal attendant); Christina Fritschi, Executive Director of SPOKES Unlimited; and David Fricke, Executive Director of UVdN. AGENDA REVIEW ACTION • Motion by Samuelson, second by Campbell to accept the agenda as presented. In favor: Campbell, Ellis, Lowther, McKenzie, Melero, Samuelson, Volpe, Morgan and Luskin. Fox-Quamme was not present for this vote. There being no votes in opposition or abstentions, the motion was carried. SILC GENERAL ACTION ITEMS December 2011 SILC Meeting Minutes ACTION • Motion by Volpe, second by Melero to accept the minutes as presented. In favor: Luskin, Morgan, Volpe, Samuelson, Melero, McKenzie, Lowther, Ellis and Campbell. Fox-Quamme was not present for this vote. There being no votes in opposition or abstentions, the motion was carried. First Quarter Financial Report (10/1/11-1/15/12) • Shelly Emery As of January 15, 2012 total expenditures are $80,028.38 which represents 21 percent of the budget, leaving a balance of $298,671.04. Under the Resource Plan Committed Revenues, 99 percent of IL State General Funds 2012 Title I Match has been spent. These match dollars are required to be spent in the March 9, 2012 Approved SILC Meeting Minutes Page 1 of 9 first year and so are always spent at a faster rate. A higher rate of training dollar expenditures are also reported, due to SILC Congress, a major expense for that category, being in this period. With 29 percent of the fiscal year gone, all other categories are well below the expected spending rate. ACTION • Motion by Samuelson, second by Luskin to approve the financial report as submitted. In favor: Campbell, Ellis, Lowther, McKenzie, Melero, Samuelson, Volpe, Morgan and Luskin. Fox-Quamme was not present for this vote. There being no votes in opposition or abstentions the motion was carried. VIDEO • Special Project Work Group • Joan Claypool A video about CIL services was shown to the SILC. This video was part of a SPIL project for 2011. The IL/VR Special Project Work Group decided that there would be two videos made, one about CIL services and one about Vocational Rehabilitation (VR) services. The purpose of the video project is to cross-train program staff so they can work more effectively together. There are four versions of the video -standard, closed caption, scripted and American Sign Language (ASL). The video is now posted on the VR Web site for easy access by VR staff. REGIONAL HOT TOPICS Ann Balzell – Portland is developing new commissions -The Portland Disability Commission and The Human Rights Commission. These commissions work very closely with the City of Portland on employment issues. In Salem there is a non-profit theater group. Ann recently sent them a suggestion to show memory clips of old movies for dementia patients. Counselors would be there to discuss the movies and talk about memory. Tony Ellis – In the Medford area, there is a 15 year old boy, C.J. Severson, who became paralyzed on Dec 1. On March 7 two of the local high schools had a basketball game benefit raising fifteen hundred dollars for him. Randy Samuelson –HASL just started their “Did You Know” campaign. They increased their Board membership and there are now an attorney and a couple of grant writers on their Board of Directors. Ben Luskin – Attended a board meeting for Empowerment Initiative, which is a progressive mental health brokerage out of Portland. They are based on the idea that the consumer defines recovery, not the doctors. Barry Fox-Quamme – ILR had two peer mentoring exchanges through Associated Programs for Rural Independent Living (APRIL). One was an executive mentoring with Ron Garcia from New Vistas, in New Mexico, and the other was with Mary Olson and Mike Beers from Mozzula, Montana, who March 9, 2012 Approved SILC Meeting Minutes Page 2 of 9 covered youth and young adult mentoring. They also had an on-site Rehabilitation Services Administration review. ILR also had an exchange with an Independent Living type organization from Sapporo Japan, which works with horticultural therapy. Dodie McKenzie – She has been receiving a daily update of an email list of the 121 programs throughout the United States. Harvalee Hess – OCB has field teachers that are planning low vision fairs. Anyone may come to these to see the different aids that might be available. One will be in Eugene on April 12, others will be in Medford on the 13th and Grants Pass on the 14th . Mike Volpe – The Disability Services Advisory Council of Linn and Benton County has a new member. Lisa Bennet has been hired by the City of Albany to look into accessibility and other issues for people with disabilities. Sherry Stock – She has been asked to do a presentation to the House Human Services Committee on disabilities. There is a cognitive simulation that no one can pass – so they are able to feel what it is like to have a brain injury, a hearing loss simulation, etc. A vision simulation with goggles shows various degrees of vision loss and they have a wheelchair and a walker available to experience. This is to build awareness with the legislators about people with disabilities. Susan Melero – She is concerned about budget cuts for people with developmental disabilities. She likes the Home Care Commission Committee she is on. Joan Claypool – She is going to be a grandmother this summer. Cindy Campbell – At the meeting in December, she talked about setting up an agency to help the CILs. That is progressing. On Wednesday she met with all of the CIL directors. ATTUNE, which is the agency she is setting up will work as a support to the CILs. Typically only a handful of the deaf and hard of hearing take advantage of the CIL services, partly because they are unaware that the CIL is also for them and partly because of communication barriers at the CILs. If a deaf person should walk in the door of a CIL, nobody may know how to communicate with them. With two new technologies recently becoming available, those barriers are no longer there. ATTUNE will be working with the CILs to set up Video Remote Interpreting (VRI). This will come through a laptop so there will always be communication when needed. Margi Morgan – Some interpreters specialize in specific settings such as medical, or educational. Margi is working with the deaf community to empower them to ask for their preferred interpreters. There are different types of sign language -SEE is different than ASL. There is English included in that system. PSE is like a combination of ASL and English, with a more English March 9, 2012 Approved SILC Meeting Minutes Page 3 of 9 word order. There are also regional dialects. Margi will be going to West Africa this September to advocate for the deaf and hard of hearing there. EXECUTIVE COMMITTEE ELECTION There are two At-Large vacancies on the Executive Committee (EC). The EC meets once a month by phone. Two people, Sheila Thomas and Mike Volpe, have indicated interest in being on the EC. The term for the first position would run from March 9, 2012 through September 30, 2013. The term for the second position would expire September 30, 2012. Mike would be interested in the position that would expire in 2012. Ben Luskin, Tony Ellis and Susan Melero may be interested in the training position. Nominations were closed. ACTION • Motion by Stock, second by Morgan to accept Mike Volpe to the EC At-Large position that expires on Sept. 30, 2012 and Sheila Thomas to the EC At-Large position that expires on Sept. 30, 2013. In favor: Campbell, Ellis, Fox-Quamme, Lowther, McKenzie, Melero, Samuelson, Stock, Volpe, Morgan and Luskin. There being no votes in opposition or abstentions, the motion was carried. PUBLIC COMMENT No public comments were made. AGENCY REPORTS DSU/IL Coordinator • Joan Claypool A written report was included in the meeting packet. Joan has been working on CIL compliance reviews. She will be reviewing ABILITREE in May and tentatively EOCIL in the fall. The long range plan would be to visit SPOKES in 2013. It is written in their grants this year that CILs will report outcome measures. Office of Vocational Rehabilitation Services (OVRS) • Stephaine Parrish Taylor There was no report from OVRS. State Rehabilitation Council (SRC) • Sherry Stock A written report was included in the meeting packet. OVRS is working with fewer people. With the hiring freeze, positions can’t be filled when someone retires. OVRS is still in Order of Selection, though it is not needing to be implemented at this time. The counselors are able to work with people as they come in. They are trying to work more with community partners. March 9, 2012 Approved SILC Meeting Minutes Page 4 of 9 There was an OVRS field staff survey completed this winter by the SRC. One issue brought forward is that field staff feel disconnected from the central office. They expressed that they are short staffed and feel emphasis has been put on numbers and outcomes, rather than on the consumers. Oregon Commission for the Blind (OCB) • Harvalee Hess In the Older Blind program, OCB serves any individual who is 55 years or older and visually impaired or blind. Teachers will go to the individual’s home. They will do mobility instructions, showing them how to travel independently; possibly cooking skills, cleaning house, and reading mail to pay bills. OCB serves individuals of any age in their Part B program. They try to focus that on individuals younger than 55 because of the split in funds. Mobility is the most common service that is requested; teaching them how to ride a bus or maneuver around the house. As of October 1, OCB started an application process where any vender providing direct services to clients will need to fill out an application to become a vender. OCB will then do a background check and check their qualifications and certifications. Oregon Disabilities Commission (ODC) • Tina Treasure A written report was included in the meeting packet. ODC has been looking at budget issues, working with the Federal Government to fix a flaw in the buy- in program for Employed Persons with Disabilities, and doing a lot of work on health systems transformation. CIL PRESENTATION Umpqua Valley disAbilities Network • David Fricke David Fricke is the Executive Director at the Umpqua Valley disAbilities Network (UVdN) located in Roseburg, Oregon. UVdN has been in their current location for over three years. The CIL was founded in 1994. There are 11.3 full time (FTE) employees working at UVdN, with approximately 80 open consumer service records (CSR). The rural surroundings of Roseburg make access to resources and services difficult. UVdN is a Dial-a-Ride provider and has made a bid for the contract to be a dispatcher for Dial-a-Ride. They send CIL information to riders when they call for a ride, using that as an approach to outreach. UVdN currently has several support groups. The Magnificent Abilities Group is a cross-disabilities group that does community activities such as voter education and registration, a flu clinic, a crafts booth at the fair, etc. There is a men’s group which is a social group. The men’s group is discussing starting a bowling league. They are starting a women’s group, as well. March 9, 2012 Approved SILC Meeting Minutes Page 5 of 9 UVdN, in partnership with the Brain Injury Association of Oregon, OCB, Oregon Office on Disability & Health (OODH) and Umpqua Community College (UCC) School of Nursing, did two traininga this year. The first is Empower Training for first year nursing students. There is a panel of people with disabilities and a series of stations for the students to go through their first year, i.e., a visually impaired station and a mobility station. This training has been added to the nurses training curriculum. The second training was Healthcare Disparity Training for second year nursing students, talking about treating the whole person, not the condition; understanding the environmental factors of the person with the disability and how access can affect their physical health. Real Choices Systems Change Grant on Sustainable Partnerships for Housing and Services • Jean Lasater, Project Coordinator Jean Lasater is from the Addictions and Mental Health Division at the Oregon Health Authority and is the coordinator of a federal grant called Building Sustainable Partnerships for Housing. Oregon is one of six states that were awarded this planning grant, which is part of a group of Federal initiatives. These initiatives come from the convergence of the Melville Act and the Olmstead Act. The grant will compile data and information about housing-related barriers to individuals that are disabled. The target population for this grant is people with disabilities who are Medicaid eligible. Information will be compiled for each community where a forum will be held. The compiled data and information will be used to start the conversation at the forums. Jean has contacted the CILs and will use them as community conveners. In areas where there is no CIL, they will use other partners/agencies. There will be ten to twelve forums held around the state. Oregon Housing and Community Services will apply for some housing vouchers. The vouchers are through the 811 program. There will be between 50 to 100 vouchers throughout the state. The Federal Government has linked this up for states with the grants doing the planning, which will fold into the application for the housing vouchers. It is thought that it is the way federal resources are going to roll out. There is interest in having Medicaid connected to housing and HUD. The project that Jean is working on was released by Medicaid and is being followed up by a grant from Housing and Urban Development (HUD). 2012 OREGON DISABILITY MEGACONFERENCE March 9, 2012 Approved SILC Meeting Minutes Page 6 of 9 The Oregon Disability MegaConference will be October 25 through 27 at the Salem Conference Center. Last year the SILC sponsored the MegaConference at the platinum level of $6,000. The question on the table for discussion is whether to sponsor the MegaConference again, and if so, at what level? Bronze is $750 to $1,499, silver is $1,500 to $2,999, gold is $3,000 to $5,999 and platinum is $6,000 and over. The tentative topic of this year’s opening MegaConference day will be employment. Thursday, the first day, would be all about employment. The next two days would have different topics along with employment in the break out sessions. The Oregon Rehabilitation Association is a new partner this year. They are going to fold their Northwest Conference into the MegaConference. There is some start up money going into this year. There are always stipends available to help consumers with the registration costs. The stipends are available until they run out, so people will want to register early. The MegaConference Executive Committee would like to have people help that are good with fund raising strategies to help develop a consumer travel fund. Shelly would like to change the registration process for the MegaConference. Consumers would register themselves and their personal assistants on the MegaConference planning began earlier this year. ACTION • Motion by Ellis, second by Melero to contribute to the MegaConference at the platinum level -$6,000. In favor: Campbell, Ellis, Fox- Quamme, Lowther, McKenzie, Melero, Samuelson, Stock, Volpe, Morgan and Luskin. There being no votes in opposition or abstentions, the motion was carried. 2011-2013 SPIL PROGRESS & COMMITTEE REPORTS Collaboration Committee (CC) – Joan Claypool Sherry Stock, as the CC Chairperson, reminded the SILC members that when they join the SILC they are committing themselves to serve on at least one committee. Once that committee has been selected and the new member has been appointed, that member needs to make sure and attend the meetings. Without the members there is no quorum and no work can be accomplished. The IL/VR Special Project Work Group is discussing a new project to set up display boards that would be in the VR and CIL offices. There has been no decision on what they will look like, but they will help consumers know about March 9, 2012 Approved SILC Meeting Minutes Page 7 of 9 the partner program available to them. They are also discussing the roll out of the video from last year’s project. Joan handed out a list of statewide peer support groups identified. She asked the members to look at the list and if they know of additional peer support groups to send them on to her. The CC is having discussions about how comprehensive to make the list. Executive Committee (EC) The primary work of the EC is the SPIL Development, so the EC Chairperson has deferred this report to the SPIL Committee report. Membership Development Committee (MDC) The MDC is still looking for new members for the SILC. The SILC needs representation from Eastern and Central Oregon and the Columbia Gorge area. SPIL Committee (SC) The SPIL Committee met yesterday with the Executive Directors of the CILs. It was a good day. It was a day of high participation and discussion about the upcoming SPIL. There is a SPIL timeline in the meeting packet showing the progress of the development. This SPIL will be effective October 1, 2013 which is Federal Fiscal Year 2014. The group agreed on three broad goals with potential objective topics. 1. A foundation exists to establish and sustain Statewide services for people with disabilities. 2. Skills and knowledge exist in order to make informed choices and maximize independence. 3. Integration and community involvement opportunities exist for consumers. The focus of the SPIL planning meeting was structure. This came out of something Barry brought up. A lot of consumers go into a CIL when they are in crisis and are looking for some sort of stability. Once there is stability, then people have the opportunity to pursue skills. Then they begin to make choices and step out beyond peer support, beyond the segregated experience and begin exploring community integration. SILC Congress Report – Sherry Stock A written report was included in the meeting packet. Next year SILC Congress will be in San Diego. STAFF REPORT & UPDATES March 9, 2012 Approved SILC Meeting Minutes Page 8 of 9 A written staff report was included in the meeting packet. In regard to the State budget, the OVRS budget will continue without a reduction. There is still a shortfall in long-term care costs for seniors and adults with physical disabilities for their in-home services, community-based facilities and nursing facilities. It is the intent of the Governor’s Office, OHA and DHS to pursue additional Medicaid funding. DHS will go back to the Legislative Emergency Board in May to update them and give recommendations if there are any other actions to be taken. In-home care hours were reduced effective January 2012 for the instrumental activities of daily living (IADL) by 10 percent. The IADL includes shopping, meal preparation, house cleaning and laundry. There are no reductions to Oregon Project Independence (OPI), Medicaid Adult Day Services, Medicaid Home Delivered Meals, Alternatives to Employment Services, Sheltered Employment, Supported Employment, Family Support Program and Family to Family Network for people with developmental disabilities and their families. House Bill 4084 passed, which increased the statute of limitations for crimes against the elderly. It also modifies the records disclosure law, which makes sure that law enforcement can investigate any allegations of abuse. It also created a council to review reporting of abuse to determine root cause of abuse and how abuse can be prevented. The Oregon Office on Disability and Health (OODH) at Oregon Health and Science University (OHSU) has requested a SILC representative be on their Advisory Council. They are planning a two hour meeting the week of April 9 via conference call or Skype. There would be two annual in-person meetings with regular e-mail correspondence over a three year period. The goals of the grant are to: • Enhance public health infrastructure and capacity related to disability • Improve state level disability surveillance and monitoring activities • Increase awareness of health related disability policy initiatives • Increase health promotion opportunities for people with disabilities to maximize health. • Improve access to healthcare for people with disabilities · Improve emergency preparedness among people with disabilities. Sherry Stock volunteered to be on this committee. ADJOURNMENT -Next Meeting • June 1 – Grants Pass March 9, 2012 Approved SILC Meeting Minutes Page 9 of 9