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Hereditary Breast and Ovarian Cancer (HBOC) Syndrome

National Resources

Bring Your Brave Campaign
This Center for Disease Control and Prevention campaign provides information about breast cancer to women younger than age 45 by sharing real stories about young women whose lives have been affected by breast cancer.

Breast Cancer in Young Women
Young women can and do get breast cancer. Most breast cancers are found in women who are 50 years old or older, but breast cancer also affects younger women. About 10% of all new cases of breast cancer in the United States are found in women younger than 45 years of age. This Center for Disease Control and Prevention web page provides information and resources.

Know: BRCA
The Center for Disease Control and Prevention and Bright Pink's Know: BRCA Assessment can help you assess your risk of having a BRCA mutation. Learning your risk can help you and your doctor make important decisions for your health. Know: BRCA also has a Healthcare Provider Center that can help providers collect detailed family history information and determine whether referral to genetic services is needed.

Information for Oregonians

HBOC Syndrome: FAQ for Oregonians


Genetic Research (1856 - 2012)

Please enjoy this short video describing genetic research, from Mendel to the ENCODE Project. Nature Video Channel produced this video with exclusive support from Illumina®.

Link to video on YouTube

Oregon Factsheets on Family Health History

En español (Spanish)

Visit our Family Health History web page for more resources.

National Resources

  • CDC National Office of Public Health Genomics: cdc.gov/genomics
    This site provides visitors with information about human genetic discoveries and how they can be used to improve health and prevent disease. This site also includes links to genomics programs in other states.
  • CDC National Division of Cancer Prevention and Control: cdc.gov/cancer
    This site provides visitors with information about cancer prevention and control, including information on: preventing cancer, data and statistics, survivors and caregivers, and policies and practices. 
  • Inside Knowledge - Get the Facts About Gynecologic Cancer: cdc.gov/cancer/knowledge
    The Center for Disease Control and Prevention’s Inside Knowledge campaign raises awareness of the five main types of gynecologic cancer: cervical, ovarian, uterine, vaginal, and vulvar. Inside Knowledge encourages women to pay attention to their bodies, so they can recognize any warning signs and seek medical care. 
  • CDC National Center for Birth Defects and Developmental Disabilities: cdc.gov/ncbddd
    This site provides visitors with information about birth defects prevention, surveillance and research. It includes information about the national Early Hearing Detection and Intervention initiative.
  • GeneReviews: genereviews.org
    This site provides comprehensive information about genetic conditions, national and international genetic clinics, and genetic testing laboratories.
  • Genetic Alliance: geneticalliance.org
    Site links to support groups for genetic conditions and other information about specific genetic conditions.
  • Genetics and Public Policy Center: dnapolicy.org
    Site links to Center which works to help policy leaders, decision makers, and the public better understand the rapidly evolving field of human genetics and its application to healthcare.
  • National Human Genome Research Institute: genome.gov
    This site provides a wealth of information about research, clinical care, and education related to the Human Genome Project, including information on ethical, legal, and social issues.
  • National Newborn Screening and Genetics Resource Center: genes-r-us.uthscsa.edu
    This site provides information and resources in the area of newborn screening and genetics to benefit health professionals, the public health community, consumers and government officials.
  • National Organization for Rare Disorders: rarediseases.org
    Many genetic diseases are rare.  The National Organization for Rare Disorders is dedicated in helping people with rare "orphan" diseases and assisting organizations that serve them.
  • U.S. Health Resources and Services Administration/Maternal and Child Health Bureau Genetic Services Branch: mchb.hrsa.gov/programs
    This site provides information about federal initiatives to improve maternal and child health services and outcomes, including genetics-related services and outcomes.

Western Regional Resources

  • Child Development and Rehabilitation Center (CDRC) at Oregon Health & Science University: cdrc.ohsu.edu
    (includes Oregon's Children with Special Health Needs Program)
    This site links to the Oregon Genetics Program co-sponsor, CDRC. The site includes information and resources for children and families impacted by special health needs, including those with inherited conditions and birth defects.
  • GeneForum: geneforum.org
    This site is devoted to informing the public about current and emerging genetic policy issues, fostering public dialogue, and promoting public participation in genetic policy development.
  • Western States Genetics Services Collaborative: westernstatesgenetics.org
    This site offers information regarding the collaboration among Alaska, California, Guam, Hawaii, Idaho, Oregon, and Washington on a federally funded multi-state project that seeks to coordinate and increase access to genetic services.

Local and National Partners (Advocacy and Support)