Identifiable information collected during this project will not be printed, except for the envelope address labels. Identifiable information collected during this project will remain in a limited access folder accessible only to project personnel (including the ScreenWise Program Analyst, Genetics Coordinator, and Epidemiologist) and will not be located in the same location as the responses to the surveys. Some participants may choose to be contacted for follow-up surveys. These individuals will be given a unique identifier that will allow project staff to briefly connect the participants identity with their responses for the purposes of completing additional data entry. No identifiers will be entered in the system. To ensure confidentiality: (1) only individuals who choose to be contacted for follow-up will be assigned a unique identifier, (2) identifiers will never be entered into the de-identified database containing survey responses, (3) identifying information will be destroyed upon completion of the project. Identifying information will be kept strictly confidential; no information that could identify the participants will be used for any publication or publicity purposes.
Individually identifiable health information will be protected with reasonable administrative, technical, and physical safeguards to ensure its confidentiality, integrity, and availability and to prevent unauthorized or inappropriate access, use, or disclosure.