Overview
ICS and agency/program data partners have independent policies (state and federal) and requirements around access and use of data that ICS and users of these data must adhere to. Due to the nature of incongruent policies across data systems (i.e., which data about clients can be used for research, and which cannot), we must carefully review requests for integrated data in collaboration with the data sources to ensure compliance with each agency and programs’ policies and regulations, and to ensure client confidentiality and lawful data use. ICS governance was established, and is actively supported, by ICS data partners and the Department of Justice (DOJ). Additionally, each program and agency have separate agreements/contracts with ICS which specifies how data can and cannot be used.
Request review
ICS works with requestors and data sources to clarify technical linkage details and identify/mitigate potential risks to Oregonians prior to data use agreement or contract execution. ICS may also convene its Data Use Committee to objectively review more complex requests in collaboration with the data sources involved. We strongly encourage requestors to complete the ICS Data Use Agreement request form in detail about their proposed project, research questions, proposed use, and ultimate need for an integrated data set.
During a Data Use Committee meeting, the ICS DUA request form will be reviewed in collaboration with the data source request forms. The Project Proposal Review Tool is used by the Data Use Committee to objectivity review requests for integrated data.
At a minimum, requests for ICS linkages are evaluated for whether:
- Proposed project purpose and data use is allowable in accordance with ODHS, OHA and data source policies and state and federal laws;
- IRB documentation is required, and if submitted, sufficient;
- Proposed privacy and security protections are sufficient;
- Minimum amount of data necessary to complete project is requested;
- Resources are available to accomplish request;
- Further clarification is needed.