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Developmental Disabilities Data

This page has data and reports from the Oregon Department of Human Services Office of Developmental Disabilities Services (ODDS) related to intellectual and developmental disabilities (I/DD) services.


Restraint and involuntary seclusion reports

Oregon Senate Bill 710 (2021) and Senate Bill 93 (2023) define guidelines for the use of restraint and involuntary seclusion for children. This includes children who receive services ODDS' host homes and residential programs. The bills require providers to submit quarterly reports on the use of restraints and involuntary seclusion.

202​6​​

Quarter
Dates reviewed
Due to ODDS
Report link
Q1
October 1 - December 31
January 7

​Q2​​January 1 - March 31
​April 7

Q3
April 1 - June 30
July 8​

​Q4
​July 1 - September 30
October 7
​​

202​5​

Quarter
Dates reviewed
Due to ODDS
Report link
Q1
October 1 - December 31
January 7
2025 Q1
​Q2​​January 1 - March 31
​April 7
2025 Q2​
Q3
April 1 - June 30
July 7
2025 Q3​
​Q4
​July 1 - September 30
October 7
​​2025 Q4​

​2024

Quarter
Dates r​​eviewed
Due to ODDS
Report link
Q1
October 1 - December 31
January 7
2024 Q1​​​
​Q2​January 1 - March 31
April 7
2024 Q2
Q3
April 1 - June 30
July 7
2024​ Q3
​Q4
July 1 - September 30
October 7
​​2024 Q4​

2023

Quarter
Dates reviewed
Due to ODD​S
Report link
Q1
October 1 - December 31
January 7
2​023 Q1
Q2
January 1 - March 31
April 7
2023 Q2
Q3
April 1 - June 30
July 7
2023 Q3
Q4
July 1 - September 30
October 7
2023 Q4​​

2022​

Quarter
Dates reviewed
Due to ODD​S
Report link
Q1
October 1 - December 31
January 7​
2​022 Q1
Q2
January 1 - March 31
April 7
2022 Q2
Q3
April 1 - June 30
July 7
2022 ​Q3
Q4
July 1 - September 30
October 7
2022 Q4​​



Incident Management Team reports

Oregon Administrative Rule 411-415-0055 requires case management entities (CMEs) to document serious incidents related to individuals enrolled in I/DD services. CMEs must have an Incident Management Team (IMT) review all serious incidents, look for trends and submit quarterly reports.

Starting in 2025, we are moving to annual Statewide Incident Management Reports.


​2024

Quarter
Dates reviewed
Due to ODDS
Report link
Q1
January 1 - March 31
May 1
2024 Q1​​​
​Q2​April 1 - June 30
​August 1
​​2024 Q2
Q3
July 1 - September 30
November 1
2024​ Q3
​Q4
​October 1 - December 31
​February 1
​​2024 Q4​

2023

Quarter
Dates reviewed
Due to ODD​S
Report link
Q1
January 1 - March 31
May 1
2​023 Q1
Q2
April 1 - June 30
August 1
2023 Q2
Q3
July 1 - September 30
November 1
2023 Q3
Q4
October 1 - December 31
February 1
2023 Q4​​

Annual IMT reports​


Quality assurance reports

NCI-IDD is a national effort to measures and improve the performance of public I/DD agencies.


Adult In-Person Survey 2021-22

This survey is based on conversations with adults who receive case management and at least one paid service from the state.


Family Surveys 2021-22

These surveys focus on the experiences of adults and children with I/DD who live in their family's home, and the experiences of the family members who provide services. 


State of the Workforce (formerly "Staff Stability Survey")

This survey collects information about Oregon's direct support workers. This includes wage, benefit, turnover and demographic information.

For additional data, see ​"Oregon Direct Support Professional Workforce Stability" on this page.


Data Highlights

This data comes from the NCI-IDD ​​Adult In-Person Survey and Child Family Survey. Case management entities use the data with their case managers, local advisory committees and policy oversight groups.


Topical Analyses

This report analyzes how participants responded in the 2016–2019 NCI-IDD surveys. Topics included health indicators, case management services, loneliness and housing satisfaction.


Oregon Trends

This report analyzes how Oregon participants responded in the 2020-2023 NCI-IDD surveys compared with their peers in other states. Topics included health and wellness, technology and safety.

This report examines the state of Oregon's direct support professional (DSP) workforce. It examines trends in DSP wages and turnover. This report uses data from the NCI State of the Workforce Survey. It focuses on provider agencies and DSPs who provide ​24-hour residential services to adults with I/DD.

ODDS is assessing equity within the I/DD system. This guide is a starting point to better understand how our system serves people differently based on race and ethnicity. We will use this data to address inequities within our system.



Mortality data

ODDS compiles mortality data for individuals that were eligible for and/or receiving DD services at the time of their death.  Mortality data will be posted on an annual basis.


BluePrint workgroup recommendations

The 2022 BluePrint Workgroup Recommendations are based on research and public feedback to make case management services better.

BluePrint RecommendationsEspañol简体中文РусскийAf SoomaaliTiếng Việt

  • ODDS started the BluePrint project in 2019 to improve case management services.
  • We hired Health Management Associates to do research. They surveyed about 1,000 people across Oregon's intellectual and developmental disabilities (I/DD) system.
  • The BluePrint group used this research to write an initial report. The group included people with I/DD, their families, case managers, advocates and providers. ODDS got feedback on the initial report through a public survey and community meetings.
  • The BluePrint group used all this feedback to write the final report in 2022.
  • We are still using this report to make case management better. Two important projects doing this work are the Individual Support Plan redesign and our statewide case management system.