When family caregivers are well supported, those who receive their care are able to stay in their homes longer and can have a better quality of life. Family caregivers provide needed assistance to help their loved one stay in their home from doing chores like shopping, housekeeping, cooking to providing personal care.
However, caregivers face many challenges and issues of their own, including physical and emotional stress, less time for their personal and family life, balancing work and caregiving responsibilities as well as financial hardship. Whether as an informal caregiver, providing support to a family member from a long distance or in the home, or providing care professionally, all caregivers share common experiences. They are the foundation of the nation’s long-term care system by providing the majority of long-term care services and supports for people with disabilities of all ages, which significantly reduces costs to Medicare, Medicaid and private insurance.
The federal Older Americans Act,
Title III Part E - Family Caregiver Support Program, provides limited funding for family caregiving support programs. This program provides funding to support caregivers or other individuals who are “informal” providers to an older individual.
Program Standards provide information on the Family Caregiver Support Program including a description of the program, federal requirements and reporting, services and unit descriptions.
Family Caregiver Handbook
Toolkit for Family Caregiver Support Program Coordinators
This toolkit is a collection of forms, resource guides, brochures and other information that has been designed by experienced Family Caregiver Support Program coordinators. The purpose of this toolkit is so all Family Caregiver Support Program coordinators can glean information or make adaptations for their use. If you as a coordinator have a form, brochure or idea you would like to share with your colleagues, please send them to