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Newborn Screening Program Updates

Newborn Screening Program Changes - January 1, 2019

The Oregon State Public Health Laboratory (OSPHL) has completed a comprehensive review and revision of the Oregon Newborn Screening (NBS) Program Oregon Administrative Rules (OARs). All health care providers caring for babies born in Oregon need to comply with the new Rules beginning January 1, 2019. 

We are providing the following documents for clarity:

Additional Resources


The NBS Program has compiled the resources below for health care providers to better understand the impact of the OAR revision. This is provided as a reference for your convenience. Please review the full OAR and NBS Practitioner's Manual to ensure your practice complies with all requirements.

Parents and Legal Guardians:
The NBS Program has provided the letter below for parents and legal guardians to understand the affect of the OAR revision and to understand the NBS Program.

Previous Newborn Screening Program Changes

The NWRNBS is providing prior provider communications for reference:
  • Letter: September 19, 2018 (pdf) - Lysosomal Storage Disorders (LSDs) added to the screening panel, implemented October 1, 2018
  • Letter: March 19, 2018 (pdf) - Lysosomal Storage Disorders (LSDs) added to OAR; Changes to timelines to collect and submit specimens; Change fees for newborn screening test kits, Implemented April 1, 2018

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