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Newborn Screening Program Updates

Notice of Proposed Rulemaking

The Northwest Regional Newborn Screening Program (NWRNBS) is amending the Oregon Administrative Rules governing the Program (333-024). Complete information can be found in the Notice of Proposed Rulemaking.

The rule changes will go into effect November 25, 2019.

For additional information, please review the November 12, 2019 Provider Letter and Newborn Bloodspot Screening Practitioner's Manual-11th Edition, 2019. (Note: This version of the Newborn Bloodspot Screening Practitioner's Manual is effective on 11/25/2019 with the rule change.)

Newborn Bloodspot Screening Program Notices

Update your information with the NWRNBS! Please see our letter requesting e-mail addresses for instructions on sending your contact information.

The NWRNBS is providing prior provider communications for reference:
  • Letter: September 19, 2018 (pdf) - Lysosomal Storage Disorders (LSDs) added to the screening panel, implemented October 1, 2018
  • Letter: March 19, 2018 (pdf) - Lysosomal Storage Disorders (LSDs) added to OAR; Changes to timelines to collect and submit specimens; Change fees for newborn screening test kits, Implemented April 1, 2018

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