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For Parents or Guardians

General Information

Parents' Brochure

This brochure gives parents helpful information about newborn bloodspot screening and is available in multiple languages. 

English │ Spanish │ Vietnamese │ Traditional Chinese │ Simplified Chinese │ Russian │ Korean │ Arabic │ Farsi │ Pashto │ Somali

Parents' Video

This informative video provides a comprehensive overview of the newborn bloodspot screening process, explaining how it works and why it is essential for every newborn. 

     Newborn Bloodspot Screening Video for Parents

Requesting Results or Bloodspot Specimens

  • Ask for Lab Results (includes sickle cell results) - Please visit the webpage for Requesting Test Results for instructions.
    • Records are not available for patients older than 6 years of age. Newborn bloodspot screening results are kept for 6 years and then are securely destroyed. For patients requesting sickle cell test results for college athletics, the laboratory is unable to provide these results.
  • Ask for the Bloodspot Specimen - Please visit the webpage for Residual Bloodspot Retention, Use, and Release for instructions.

Exception

  • Opt Out of Screening - If you adhere to a religion that opposes this testing, you may apply for an exemption. Please contact your delivering provider to complete the form.

Advocacy Resources

The National Organization for Rare Disorders (NORD) offers a listing of organizations and resources that can provide families with free information, support and services. Find a rare disease patient organization (website).


Sickle Cell Trait Information